Consent in medical testing
There’s a debate going on in Massachusetts about whether written permission should be required for HIV testing or just verbal consent to medical treatment in general. Currently MA is one of only two states that require written consent, and groups who want to encourage more testing are trying to change this. Personally I don’t really care whether consent is verbal or written, but I think there need to be stronger, not weaker, consent requirements for all medical procedures.
We live in a system where, when someone goes into a doctor’s office, the doctor usually just tells them what medical tests they are going to have, maybe asking, as an afterthought, if that’s OK. This is wrong. As I explained in a blog post from yesterday, this is not true consent. Many people, especially if they are shy by temperament, find it difficult or impossible to refuse what a doctor tells them to do. We need a system where the patient, not the doctor, is in charge of medical decisions. Instead of saying what medical procedures are needed, doctors should tell people what services they offer (perhaps through a brochure, sheet of paper, or sign) and the person can indicate which services they would like, with advice from the doctor only if asked.
Another part of the proposed law would require doctors’ offices to have written permission before sharing a customer’s HIV status. This seems pretty reasonable. People should be in control of their own medical records, and it should be a no-brainer that doctors should not share information without the permission of the person the information is about. But of course, doctors had paternalistic and pompous things to say in opposition to the law:
Dr. Howard Heller…said the legislation would mean that each time he referred an HIV patient to a different specialist outside of his organization, he could not tell that provider about any HIV-related medications that patient was taking, without first getting the patient’s written permission.
And that’s a problem why?
“Each time we share information we would have to have written informed consent…and each step we put in the way puts more impediments to getting tested,” said Dr. Stephen Boswell.
That’s right, how dare the wishes of the people he is supposed to be serving get in the way of making them to do what he wants? I know doctors are trying to make people healthier, but too many of them have lost sight of the idea of liberty and the dignity of individuals. Doctors need to give up their paternalistic attitudes and start treating their customers with respect, just as members of any other profession would. They need to focus less on what they think is best for their patients and more on their patients’ wishes.